Rallying Around Amelia: A Debate on Disability

The blogosphere and the airwaves are filled with indignation regarding what has happened to Amelia Rivera, a three year old who has a rare genetic disorder called Wolf-Hirschhorn syndrome. Amelia needs a kidney transplant, but physicians at Children’s Hospital of Philadelphia have denied her access due to her mental impairment. The discussion held in a conference room at the hospital is recounted in detail by Amelia’s mother, Chrissy, on her blog.

Parents of special needs children around the world are outraged not only for Amelia but at the notion that health care providers, even at one of the best children’s hospitals in the world, might arbitrarily decide to deny children treatment on the basis of their mental status.…

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Depression

If you've quit smoking in the last few weeks or months and are feeling blue, please be patient with yourself. You are going through some big changes, and your body and mind need some time to adjust.

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Gingrich on IVF: Bad for Families, Bad for Bioethics

Scientists, reproductive specialists and andrologists had better prepare. If Newt Gingrich has his way (and wins the Presidency), he will have a whole new world in store for science and medicine.

Newt has revived the embryo debate in Republican politics, giving bioethicists a “walk-on role” as Michael Cook explains it. How successful he will be on keeping it on the radar is another issue altogether. It is just as likely that Newt may have just been pandering to the audience at the Exciting Idlewild Baptist Church in Florida, trying to secure votes that clearly were not enough to win the Florida Primary.…

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This April in AJOB: Research Subjects as Problems and Mandatory HIV Testing

Today, the April issue of The American Journal of Bioethics is now online.

This month, the journal features two target articles addressing controversial ideas–one in the world of clinical research, the other in the worlds of healthcare and public health.

As Sarah Edwards explains in her Target Article, “Assessing the Remedy: The Case for Contracts in Clinical Trials“, one of the biggest problems for getting adequate clinical trial data is the freedom of research participants to withdraw at any time.…

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Acetanisole

FDA approved food additive; FEMA GRAS; found in beef, cranberry, guava, grape, mango, peppermint; used in dairy products, hard candies.

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